"Save My Kid" : How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System / Amanda M. Gengler.
Material type:
TextPublisher: New York, NY : New York University Press, [2020]Copyright date: ©2020Description: 1 online resourceContent type: - 9781479863938
- 9781479834327
- Catastrophic illness -- Social aspects -- United States
- Child health services -- United States
- Critically ill children -- Family relationships
- Critically ill children -- Medical care -- United States
- Health services accessibility -- United States
- Parents of terminally ill children -- Psychology
- SOCIAL SCIENCE / Children's Studies
- Ronald Mcdonald House
- care-captaining in medicine
- care-entrusting in medicine
- children with critical illness
- critical illness management
- critical illness treatment
- cultural health capital
- emotional costs of critical illness
- emotional management for critical illness
- emotional management of critical illness
- ethnographic research in medicine
- families of critically ill children
- healthcare inequalities for critical illness
- healthcare inequality for critical illness
- research methodology in sociology
- 618.920029 23
- RJ47.7 .G464 2020
- online - DeGruyter
| Item type | Current library | Call number | URL | Status | Notes | Barcode | |
|---|---|---|---|---|---|---|---|
eBook
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Biblioteca "Angelicum" Pont. Univ. S.Tommaso d'Aquino Nuvola online | online - DeGruyter (Browse shelf(Opens below)) | Online access | Not for loan (Accesso limitato) | Accesso per gli utenti autorizzati / Access for authorized users | (dgr)9781479834327 |
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A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals-deeply rooted in the culture of illness and medicine-play in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake.
Mode of access: Internet via World Wide Web.
In English.
Description based on online resource; title from PDF title page (publisher's Web site, viewed 01. Nov 2023)