TY  - BOOK
AU  - Gengler,Amanda M.
TI  - "Save My Kid": How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System 
SN  - 9781479863938
AV  - RJ47.7 .G464 2020
U1  - 618.920029 23
PY  - 2020///]
CY  - New York, NY : 
PB  - New York University Press, 
KW  - Catastrophic illness
KW  - Social aspects
KW  - United States
KW  - Child health services
KW  - Critically ill children
KW  - Family relationships
KW  - Medical care
KW  - Health services accessibility
KW  - Parents of terminally ill children
KW  - Psychology
KW  - SOCIAL SCIENCE / Children's Studies
KW  - bisacsh
KW  - Ronald Mcdonald House
KW  - care-captaining in medicine
KW  - care-entrusting in medicine
KW  - children with critical illness
KW  - critical illness management
KW  - critical illness treatment
KW  - cultural health capital
KW  - emotional costs of critical illness
KW  - emotional management for critical illness
KW  - emotional management of critical illness
KW  - ethnographic research in medicine
KW  - families of critically ill children
KW  - healthcare inequalities for critical illness
KW  - healthcare inequality for critical illness
KW  - research methodology in sociology
N1  - restricted access
N2  - A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals-deeply rooted in the culture of illness and medicine-play in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake
UR  - https://www.degruyter.com/isbn/9781479834327
UR  - https://www.degruyter.com/document/cover/isbn/9781479834327/original
ER  -