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Crucible of the Incurable : Facing ALS / Anthony Stavrianakis.

By: Material type: TextTextSeries: Expertise: Cultures and Technologies of KnowledgePublisher: Ithaca, NY : Cornell University Press, [2024]Copyright date: 2024Description: 1 online resource (248 p.)Content type:
Media type:
Carrier type:
ISBN:
  • 9781501778346
Subject(s): DDC classification:
  • 616.8/39 23/eng/20240613
LOC classification:
  • RC406.A24
  • RC406.A24 S78 2024
Other classification:
  • online - DeGruyter
Online resources:
Contents:
Frontmatter -- Contents -- Preface FACING AMYOTROPHIC LATERAL SCLEROSIS -- Acknowledgments -- Introduction ON LINKING KNOWLEDGE AND CARE FOR ALS -- Part 1 KNOWLEDGE -- 1 THE EMERGENCE OF A DIAGNOSTIC CERTITUDE -- 2 NOSOLOGICAL INDETERMINATIONS -- Part 2 CARE -- 3 MULTIDISCIPLINARY ALS CARE -- 4 ALS CLINIC -- 5 PALLIATIVE CARE CLINIC -- Part 3 ONE BY ONE -- 6 EPISTLES TO ONES -- 7 PLEA FOR A BLESSING -- 8 ADVOCATE -- Conclusion THE INCURABLE AND THE POSSIBLE -- Notes -- Index
Summary: Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to "live as well as possible, for as long as possible" in accordance with the normative work at the heart of outpatient ALS care? Crucible of the Incurable shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace.
Holdings
Item type Current library Call number URL Status Notes Barcode
eBook eBook Biblioteca "Angelicum" Pont. Univ. S.Tommaso d'Aquino Nuvola online online - DeGruyter (Browse shelf(Opens below)) Online access Not for loan (Accesso limitato) Accesso per gli utenti autorizzati / Access for authorized users (dgr)9781501778346

Frontmatter -- Contents -- Preface FACING AMYOTROPHIC LATERAL SCLEROSIS -- Acknowledgments -- Introduction ON LINKING KNOWLEDGE AND CARE FOR ALS -- Part 1 KNOWLEDGE -- 1 THE EMERGENCE OF A DIAGNOSTIC CERTITUDE -- 2 NOSOLOGICAL INDETERMINATIONS -- Part 2 CARE -- 3 MULTIDISCIPLINARY ALS CARE -- 4 ALS CLINIC -- 5 PALLIATIVE CARE CLINIC -- Part 3 ONE BY ONE -- 6 EPISTLES TO ONES -- 7 PLEA FOR A BLESSING -- 8 ADVOCATE -- Conclusion THE INCURABLE AND THE POSSIBLE -- Notes -- Index

restricted access online access with authorization star

http://purl.org/coar/access_right/c_16ec

Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to "live as well as possible, for as long as possible" in accordance with the normative work at the heart of outpatient ALS care? Crucible of the Incurable shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace.

Mode of access: Internet via World Wide Web.

In English.

Description based on online resource; title from PDF title page (publisher's Web site, viewed 20. Nov 2024)