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020 _a9780691123172
_qprint
020 _a9781400840410
_qPDF
024 7 _a10.1515/9781400840410
_2doi
035 _a(DE-B1597)9781400840410
035 _a(DE-B1597)447680
035 _a(OCoLC)979779984
040 _aDE-B1597
_beng
_cDE-B1597
_erda
050 4 _aRA645.S53
_bF85 2017
072 7 _aSOC002010
_2bisacsh
082 0 4 _a362.1961527009663
_223
084 _aonline - DeGruyter
100 1 _aFullwiley, Duana
_eautore
245 1 4 _aThe Enculturated Gene :
_bSickle Cell Health Politics and Biological Difference in West Africa /
_cDuana Fullwiley.
250 _aCourse Book
264 1 _aPrinceton, NJ :
_bPrinceton University Press,
_c[2011]
264 4 _c©2012
300 _a1 online resource (368 p.) :
_b7 halftones. 1 line illus. 4 maps.
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
347 _atext file
_bPDF
_2rda
505 0 0 _tFrontmatter --
_tContents --
_tIllustrations --
_tPreface --
_tAcknowledgments --
_tChapter one. Introduction: The Powers of Association --
_tChapter two. Healthy Sicklers with "Mild" Disease: Local Illness Affects and Population- Level Effects --
_tChapter three. The Biosocial Politics of Plants and People --
_tChapter four. Attitudes of Care --
_tChapter five. Localized Biologies: Mapping Race and Sickle Cell Difference in French West Africa --
_tChapter six. Ordering Illness: Heterozygous "Trait" Suffering in the Land of the Mild Disease --
_tChapter seven. The Work of Patient Advocacy --
_tConclusion. Economic and Health Futures amid Hope and Despair --
_tNotes --
_tReferences --
_tIndex
506 0 _arestricted access
_uhttp://purl.org/coar/access_right/c_16ec
_fonline access with authorization
_2star
520 _aIn the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell "mild" in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care. Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal's health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists' attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population's measured biological success. The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined--and obscured--the nature of this illness in Senegal today.Some images inside the book are unavailable due to digital copyright restrictions.
530 _aIssued also in print.
538 _aMode of access: Internet via World Wide Web.
546 _aIn English.
588 0 _aDescription based on online resource; title from PDF title page (publisher's Web site, viewed 24. Aug 2021)
650 0 _aGenetic disorders
_vSocial aspects
_vSenegal.
650 0 _aGenetic disorders
_xSocial aspects
_zSenegal.
650 0 _aHEALTH &amp
_xFITNESS
_vDiseases
_vGeneral.
650 0 _aHEALTH &amp
_xFITNESS
_vHealth Care Issues.
650 0 _aHISTORY
_vAfrica
_vWest.
650 0 _aKinship
_vHealth aspects
_vSenegal.
650 0 _aKinship
_xHealth aspects
_zSenegal.
650 0 _aMEDICAL
_vDiseases.
650 0 _aMEDICAL
_vHealth Care Delivery.
650 0 _aMEDICAL
_vHealth Policy.
650 0 _aMEDICAL
_vPublic Health.
650 0 _aSOCIAL SCIENCE
_vDisease &amp
_xHealth Issues.
650 0 _aSickle cell anemia
_vGenetic aspects.
650 0 _aSickle cell anemia
_vPatients
_vServices for
_vSenegal.
650 0 _aSickle cell anemia
_vSocial aspects
_vSenegal.
650 0 _aSickle cell anemia
_xGenetic aspects.
650 0 _aSickle cell anemia
_xPatients
_xServices for
_zSenegal.
650 0 _aSickle cell anemia
_xSocial aspects
_zSenegal.
650 7 _aSOCIAL SCIENCE / Anthropology / Cultural & Social.
_2bisacsh
653 _aAfrica.
653 _aAfrican anthropology.
653 _aAfrican genetics.
653 _aAfrican sicklers.
653 _aAlbert Royer Children's Hospital.
653 _aCNTS.
653 _aCentre nationale de transfusion sanguine.
653 _aDNA haplotypes.
653 _aDNA sequences.
653 _aHbAS.
653 _aInternational Organization for the Fight against Sickle Cell.
653 _aNational Blood Transfusion Center.
653 _aOILD.
653 _aRFLP.
653 _aRestriction Fragment Length Polymorphism.
653 _aSenegal.
653 _aSenegalese attitudes.
653 _aSenegalese sickle cell.
653 _aalternative care.
653 _abiological expressions.
653 _abiosocial politics.
653 _aculture.
653 _adisease experiences.
653 _adisease expression.
653 _aeconomic austerity.
653 _aeconomically triaged care.
653 _aethnic population purity.
653 _afagara.
653 _agenetic difference.
653 _agenetic sequence.
653 _ageneticists.
653 _aglobal health problems.
653 _aglobal health.
653 _ahealing practices.
653 _ahealth intervention.
653 _ahealth.
653 _ahealthy sicklers.
653 _aheterozygous sickle cell.
653 _alow-tech strategy.
653 _amultilateral institutions.
653 _anormalization techniques.
653 _apatient advocacy.
653 _apolitical apathy.
653 _apopulation.
653 _apublic health.
653 _apublic neglect.
653 _aself-care.
653 _asickle cell DNA markers.
653 _asickle cell anemia.
653 _asickle cell gene.
653 _asickle cell research.
653 _asickle cell trait.
653 _asicklers.
653 _asocial networks.
653 _atraditional plants.
653 _avitality.
850 _aIT-RoAPU
856 4 0 _uhttps://doi.org/10.1515/9781400840410?locatt=mode:legacy
856 4 0 _uhttps://www.degruyter.com/isbn/9781400840410
856 4 2 _3Cover
_uhttps://www.degruyter.com/cover/covers/9781400840410.jpg
942 _cEB
999 _c206511
_d206511