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008 231101t20202020nyu fo d z eng d
020 _a9781479863938
_qprint
020 _a9781479834327
_qPDF
024 7 _a10.18574/nyu/9781479863938.001.0001
_2doi
035 _a(DE-B1597)9781479834327
035 _a(DE-B1597)575778
035 _a(OCoLC)1129193631
040 _aDE-B1597
_beng
_cDE-B1597
_erda
050 4 _aRJ47.7
_b.G464 2020
072 7 _aSOC047000
_2bisacsh
082 0 4 _a618.920029
_223
084 _aonline - DeGruyter
100 1 _aGengler, Amanda M.
_eautore
245 1 1 _a"Save My Kid" :
_bHow Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System /
_cAmanda M. Gengler.
264 1 _aNew York, NY :
_bNew York University Press,
_c[2020]
264 4 _c©2020
300 _a1 online resource
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
347 _atext file
_bPDF
_2rda
506 0 _arestricted access
_uhttp://purl.org/coar/access_right/c_16ec
_fonline access with authorization
_2star
520 _aA frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals-deeply rooted in the culture of illness and medicine-play in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake.
538 _aMode of access: Internet via World Wide Web.
546 _aIn English.
588 0 _aDescription based on online resource; title from PDF title page (publisher's Web site, viewed 01. Nov 2023)
650 0 _aCatastrophic illness
_xSocial aspects
_zUnited States.
650 0 _aChild health services
_zUnited States.
650 0 _aCritically ill children
_xFamily relationships.
650 0 _aCritically ill children
_xMedical care
_zUnited States.
650 0 _aHealth services accessibility
_zUnited States.
650 0 _aParents of terminally ill children
_xPsychology.
650 7 _aSOCIAL SCIENCE / Children's Studies.
_2bisacsh
653 _aRonald Mcdonald House.
653 _acare-captaining in medicine.
653 _acare-entrusting in medicine.
653 _achildren with critical illness.
653 _acritical illness management.
653 _acritical illness treatment.
653 _acultural health capital.
653 _aemotional costs of critical illness.
653 _aemotional management for critical illness.
653 _aemotional management of critical illness.
653 _aethnographic research in medicine.
653 _afamilies of critically ill children.
653 _ahealthcare inequalities for critical illness.
653 _ahealthcare inequality for critical illness.
653 _aresearch methodology in sociology.
850 _aIT-RoAPU
856 4 0 _uhttps://www.degruyter.com/isbn/9781479834327
856 4 2 _3Cover
_uhttps://www.degruyter.com/document/cover/isbn/9781479834327/original
942 _cEB
999 _c219232
_d219232