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020 _a9781800734111
_qPDF
024 7 _a10.1515/9781800734111
_2doi
035 _a(DE-B1597)9781800734111
035 _a(DE-B1597)701034
040 _aDE-B1597
_beng
_cDE-B1597
_erda
050 4 _aRB155 . E797 2003
072 7 _aSOC000000
_2bisacsh
082 0 4 _a174/.296042
084 _aonline - DeGruyter
100 1 _aWert, Guido de
_eautore
245 1 0 _aEthics and Genetics :
_bA Workbook for Practitioners and Students /
_cGuido de Wert, Ruud H.J. ter Meulen, Roberto Mordacci, Mariachiara Tallacchini.
264 1 _aNew York ;
_aOxford :
_bBerghahn Books,
_c[2003]
264 4 _c2003
300 _a1 online resource (144 p.)
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
347 _atext file
_bPDF
_2rda
490 0 _aTeaching Ethics: Material for Practitioner Education ;
_v2
505 0 0 _tFrontmatter --
_tContents --
_tForeword --
_tIntroduction --
_tChapter 1: Ethics of Reproductive Genetic Counselling, Prenatal and Preimplantation Testing --
_tChapter 2: Ethics of Predictive Genetic Testing --
_tChapter 3: Population Screening and Genetic Community Research --
_tChapter 4: The Social Use of Genetic Information --
_tChapter 5: Are We Our Genes? --
_tCritical Readers --
_tList of Participants --
_tReferences --
_tIndex
506 0 _arestricted access
_uhttp://purl.org/coar/access_right/c_16ec
_fonline access with authorization
_2star
520 _aGenetic information plays an increasingly important role in ourlives. As a result of the Human Genome Project, knowledge ofthe genetic basis of various diseases is growing, withimportant consequences for the role of genetics in clinicalpractice, health care systems and for society at large. In theclinical setting genetic testing may result in a better insightinto susceptibility for inheritable diseases, not only before orafter birth, but also at later stages in life. Besides prenataltesting and pre-conceptional testing, predictive testing hasresulted in new possibilities for the early detection, treatmentand prevention of inheritable diseases. However, not all inheritable diseases that can be predicted onthe basis of genetic information can be treated or cured.Should we offer genetic tests to people for untreatablediseases? Should we test every individual who wants to knowhis or her genetic status? Should we inform family membersabout the results of genetic tests of individuals, even whenthere are no possibilities for treatment? What, in such cases,is the role of the "right-not-to-know"? Should we informfamily members when there is only an increased risk of adisease? This book deals with the ethical issues of clinicalgenetics, as well as ethical issues that arise in geneticscreening, the research of populations, and the use of geneticinformation for access to insurance and the workplace.
538 _aMode of access: Internet via World Wide Web.
546 _aIn English.
588 0 _aDescription based on online resource; title from PDF title page (publisher's Web site, viewed 26. Aug 2024)
650 0 _aHuman genetics
_xResearch
_xMoral and ethical aspects.
650 0 _aMedical genetics
_xMoral and ethical aspects.
650 7 _aSOCIAL SCIENCE / General.
_2bisacsh
700 1 _aMeulen, Ruud H.J. ter
_eautore
700 1 _aMordacci, Roberto
_eautore
850 _aIT-RoAPU
856 4 0 _uhttps://doi.org/10.1515/9781800734111?locatt=mode:legacy
856 4 0 _uhttps://www.degruyter.com/isbn/9781800734111
856 4 2 _3Cover
_uhttps://www.degruyter.com/document/cover/isbn/9781800734111/original
942 _cEB
999 _c305569
_d305569